Two months ago, my world changed forever. My son, David, was diagnosed with Duchenne muscular dystrophy (DMD)—a devastating genetic disease that destroys muscles at an alarming rate. From the moment he was born, I sensed something was different. David never crawled, and walking didn’t come until he was 1 year and 3 months old, and even then, it was with great difficulty.
At first, doctors assured me everything was fine, telling us to “wait and see.” But as David grew, the signs became impossible to ignore. Finally, at 4 years old, a neurologist identified the symptoms: his hypertrophied calves, difficulty rising from a lying position, and other unmistakable signs of DMD. A simple Creatine Kinase (CK) test confirmed our worst fears. Instead of the normal 100–200 units, David’s levels were an overwhelming 11,900 units—a clear indicator of rapid muscle destruction.
Without intervention, children with DMD lose the ability to walk by the age of 10. By their 20s, their hearts and lungs succumb to the disease. But there is hope. Treatments exist that can slow the progression, and groundbreaking injections like Elevidys offer a lifeline. Elevidys could halt the muscle destruction, giving David a chance for a full and happy life. However, the cost is staggering: $2 901 907 USD.
This treatment is only available to children between the ages of 4 and 5, meaning time is running out. Every single day matters.
We’re reaching out to everyone who cares—to anyone who believes in giving children like David a chance at life. Your contribution, no matter how small, can bring us closer to this life-saving treatment. Together, we can give David the chance he deserves.
Thank you for your kindness and generosity. Let’s make this miracle happen, one step at a time. Donate today and help us save David.
Every share, every donation, and every prayer brings us closer. Thank you for being part of David’s fight.